Chichester and Arun Down Syndrome Group Logo

Chichester and Arun Down Syndrome Group

A local group providing support to families who have a person with Down Syndrome in the Chichester and Arun Districts.

Safeguarding

Safeguarding – CADSG appointed a Designated Safeguarding Officer who can be contacted by email: safeguardingcadsg@gmail.com

If your concern is urgent or you are unable to get hold of the Safeguarding Officer, please contact Integrated Front Door (IFD) directly. IFD is a single triage point for assessing the needs of any child (under 18 years) in concern. Tel: 01403 229900

If you have an urgent concern regarding an adult, contact West Sussex Adult Social Care. Tel: 01243 642121

Please note, we are not responsible for the content of external links:


The Elizabeth Foundation

A Portsmouth based charity helping young deaf children learn to listen and talk

https://elizabeth-foundation.org/


PACSO

PACSO is a local charity that supports children with disabilities and their families in the Chichester and Arun districts of West Sussex from 0 – 25 years.

https://pacso.org.uk/

Reaching Families

Set up to empower, care for and inform parents and families of children and young people with special educational needs and disabilities in West Sussex

https://www.reachingfamilies.org.uk/

Suzanne Hill School of Dance

Teaching children and adults of all ages and abilities in and around Bognor Regis in a friendly and supportive environment.

https://www.suzannehilldance.co.uk


The Snowdrop Trust

Supporting families in Sussex with very sick children stay at home 

https://www.thesussexsnowdroptrust.com


Portsmouth Down Syndrome Association

Committed to improving the lives of children and their families, in Portsmouth and South Hampshire.

https://portsmouthdsa.org/

National Charities & Supports

Blue Badge Parking Scheme

The Blue Badge scheme is for people with severe mobility problems. It allows Blue Badge holders to park close to where they need to go. The scheme operates throughout the UK and is managed by local authorities, who deal with applications and issue Blue Badges.

www.gov.uk/blue-badge-scheme-information-council


Cerebra

Supporting families with a child with a brain condition

https://www.cerebra.org.uk


Disability Benefit Advice

Disability Living Allowance; Employment and Support Allowance; Incapacity Benefit; Constant Attendance Allowance; Industrial Injuries Disablement Benefit (diseases and deafness); Disabled Facilities Grants; The Independent Living Fund; Medical costs for war pensioners; Vaccine Damage Payment; Attendance Allowance; Direct payments for care and services; Benefits if you are ill or disabled – changes you need to know about; Disabled Students’ Allowances (disabled people section); Community Care Grants; Industrial Injuries Disablement Benefit (accidents); Blue Badge parking scheme (disabled people section); War Disablement Pension; Severe Disablement Allowance from Direct Gov

www.gov.uk/browse/benefits


Down Syndrome Education International

We work to discover how and why development differs for children with Down syndrome, and how we can best help them to achieve their potential.

We deliver evidence-based resources around the world that help families and professionals to provide effective teaching approaches and interventions.

Resources such as ‘See and Learn’ are available from DSEI.

Down Syndrome Education Online


Downs Heart Group

A charity offering support and information relating to heart conditions associated with Down’s Syndrome

www.dhg.org.uk/


Down’s Syndrome Association

The Down’s Syndrome Association (DSA) supports all people who have Down’s syndrome, their parents and carers and the professionals who work with them, throughout their lives.

CADSG is an affiliated group of the DSA.

https://www.downs-syndrome.org.uk


Mencap

We work in partnership with people with a learning disability, and all our services support people to live life as they choose 

www.mencap.org.uk/


Makaton Charity 

A unique communication programme that uses symbols, signs and speech to enable people to communicate.

https://www.makaton.org/


NHS Choices – Carers Direct –Carers Direct is the official website designed to help you get the help and support you need as a carer

www.nhs.uk/carersdirect/Pages/CarersDirectHome.aspx


SOS!SEN

Help and advice for SEN We offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN).

www.sossen.org.uk/


Special Kids in the UK

Offering friendship and support for families of children and young people with special needs throughout the United Kingdom. Special Needs covers a broad spectrum including learning, physical and behavioural difficulties.

http://www.specialkidsintheuk.org/


Speech picture resources

Free pictures to aid speech practice

www.speech-language-therapy.com/


Singing Hands

Suzanne and Tracy introduce Makaton signing through singing.

https://singinghands.co.uk/

Equipment and other funding

These organisations can provide funding for equipment for children with Downs Syndrome

Lifeline4kids.org.uk
Caudwellchildren.com
Childrentoday.org.uk
my-AFK.org
Elifarfoundation.org.uk.

Wills and Trusts

Wills and Trusts – Downs Syndrome Association

Family Legal Guide: Wills, Trusts & LPAs | Down Syndrome UK

Protect the Financial Future of a Loved One With Down Syndrome