Chichester and Arun Down Syndrome Group Logo

Chichester and Arun Down Syndrome Group

A local group providing support to families who have a person with Down Syndrome in the Chichester and Arun Districts.

Safeguarding

Safeguarding – CADSG appointed a Designated Safeguarding Officer who can be contacted by email: safeguardingcadsg@gmail.com

If your concern is urgent or you are unable to get hold of the safeguarding Officer, please contact Integrated Front Door (IFD) directly. IFD is a single triage point for assessing the needs of any child (under 18 years) in concern. Tel: 01403 229900

If you have an urgent concern regarding an adult, contact West Sussex Adult Social Care. Tel: 01243 642121

Please note, we are not responsible for the content of external links.

Little Stars

Friendly rhyme and sign group for children aged 0-5 years led by Qualified Makaton Teacher, Laura

https://lauraslittlestars.com


The Elizabeth Foundation

Helping young deaf children learn to listen and talk

https://elizabeth-foundation.org/


PACSO

PACSO is a local charity that supports children with disabilities and their families in the Chichester and Arun districts of West Sussex

https://pacso.org.uk/

Reaching Families

Set up to empower, care for and inform parents and families of children and young people with special educational needs and disabilities in West Sussex

https://www.reachingfamilies.org.uk/

Suzanne Hill School of Dance

Teaching children and adults of all ages and abilities in West Sussex in a friendly and supportive environment

https://www.suzannehilldance.co.uk


The Snowdrop Trust

Supporting families in Sussex with very sick children stay at home https://www.thesussexsnowdroptrust.com/helping-us/family-volunteering-2/


Portsmouth Down Syndrome Association

Committed to improving the lives of children and their families, in Portsmouth and South Hampshire

https://portsmouthdsa.org/

Solent Speech

Speech and language therapy agency based in Havant

https://www.solentspeech.co.uk/

National Charities & Support§

Blue Badge Parking Scheme

The Blue Badge scheme is for people with severe mobility problems. It allows Blue Badge holders to park close to where they need to go. The scheme operates throughout the UK and is managed by local authorities, who deal with applications and issue Blue Badges.

www.gov.uk/blue-badge-scheme-information-council


Cerebra

Supporting families with a child with a brain condition

https://www.cerebra.org.uk/


Disability Benefit Advice

Disability Living Allowance; Employment and Support Allowance; Incapacity Benefit; Constant Attendance Allowance; Industrial Injuries Disablement Benefit (diseases and deafness); Disabled Facilities Grants; The Independent Living Fund; Medical costs for war pensioners; Vaccine Damage Payment; Attendance Allowance; Direct payments for care and services; Benefits if you are ill or disabled – changes you need to know about; Disabled Students’ Allowances (disabled people section); Community Care Grants; Industrial Injuries Disablement Benefit (accidents); Blue Badge parking scheme (disabled people section); War Disablement Pension; Severe Disablement Allowance from Direct Gov

www.gov.uk/browse/benefits


Down Syndrome Education International

Down Syndrome Education International is a leading international charity dedicated to raising levels of educational achievement among children with Down syndrome. We have been at the forefront of developmental and educational research and evidence-based services improving outcomes for children with Down syndrome for over 30 years

www.dseinternational.org/en-us/


Downs Heart Group

A charity offering support and information relating to heart conditions associated with Down’s Syndrome

www.dhg.org.uk/


Down’s Syndrome Association

We are the only organisation in this country focusing solely on all aspects of living successfully with Down’s syndrome.

https://www.downs-syndrome.org.uk


IPSEA

Registered charity offering free and independent advice to parents of children with special educational needs in England and Wales to assess and provide for children with special educational needs

www.ipsea.org.uk/


Mencap

We work in partnership with people with a learning disability, and all our services support people to live life as they choose www.mencap.org.uk/


Makaton Charity – https://www.makaton.org/


NHS Choices – Carers Direct –Carers Direct is the official website designed to help you get the help and support you need as a carer

www.nhs.uk/carersdirect/Pages/CarersDirectHome.aspx


SOS!SEN

Help and advice for SEN We offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN).

www.sossen.org.uk/


Special Kids in the UK

Offering friendship and support for families of children and young people with special needs throughout the United Kingdom. Special Needs covers a broad spectrum including learning, physical and behavioural difficulties.

http://www.specialkidsintheuk.org/


Speech picture resources

Free pictures to aid speech practice

www.speech-language-therapy.com/


Singing Hands

Suzanne and Tracy introduce Makaton signing through singing – https://singinghands.co.uk/

Trikes Fund

These organisations can provide funding for trikes for children with Downs Syndrome
Lifeline4kids.org.uk
Caudwellchildren.com
Childrentoday.org.uk
my-AFK.org
Elifarfoundation.org.uk.